Frankie's Story
Frankie was adopted at 5 1/2 years old. He is an amazing child. He was home for about 8 months when he had his first seizure. Then, he was diagnosed with Epilepsy. We went to many Dr's and tried many different medications. We discovered NYU. The Dr's and staff there have been amazing. Frankie was evaluated to see if he was a surgical candidate. Well, he is. They plan on doing an invasive EEG (EEG leads placed directly on his brain) and then weaning his meds to allow him to have seizures. They will then determine which areas are causing the seizures. If the area is a safe area to remove they will remove that epileptic area of his brain. They do not think in Frankie's case this will be a cure, but, they hope it will significantly reduce his seizures so he wont require so much medication. It is a 3 step surgery. He will go to the OR to have the leads placed on his brain then brought back to the Pediatric ICU and wait for seizures to occur. He will then go back to the OR for a resection (if it can be done), then they will replace the EEG leads. He will return to the Pediatric ICU again and wait to see if he has seizures. Step 3 he will then go back to the surgery for further resection, remove the leads, and close him up. Surgery is scheduled for 12/9/10 and we will probably be in the hospital for Christmas. The poor kid will be put through a lot. We trust these Doctors and staff so we hope this is the right thing to do.
Jasmine and I started praying for Frankie at night when he was getting close to his surgery. She is 4 now, and I explained to her that Frankie was adopted from China at the same time that she was. I told her he needed up to pray for him because he is in the hospital and just hasn't been feeling well. We have prayed for him every night. Today, about lunchtime, she came over to me and said, "Mom can we pray for Frankie again right now?" Of course we did! I just wanted to let you know that he got extra prayers from us today :-)
ReplyDelete~Tammy Jarrett
Tammy that is just so sweet!! Tell Jasmine we said "Thank You and her prayers are working but, not to stop yet!" What a sweet girl!!!
ReplyDelete