Frankie was adopted at 5 1/2 years old. He is an amazing child. He was home for about 8 months when he had his first seizure. Then, he was diagnosed with Epilepsy. We went to many Dr's and tried many different medications. We discovered NYU. The Dr's and staff there have been amazing. Frankie was evaluated to see if he was a surgical candidate. Well, he is. They plan on doing an invasive EEG (EEG leads placed directly on his brain) and then weaning his meds to allow him to have seizures. They will then determine which areas are causing the seizures. If the area is a safe area to remove they will remove that epileptic area of his brain. They do not think in Frankie's case this will be a cure, but, they hope it will significantly reduce his seizures so he wont require so much medication. It is a 3 step surgery. He will go to the OR to have the leads placed on his brain then brought back to the Pediatric ICU and wait for seizures to occur. He will then go back to the OR for a resection (if it can be done), then they will replace the EEG leads. He will return to the Pediatric ICU again and wait to see if he has seizures. Step 3 he will then go back to the surgery for further resection, remove the leads, and close him up. Surgery is scheduled for 12/9/10 and we will probably be in the hospital for Christmas. The poor kid will be put through a lot. We trust these Doctors and staff so we hope this is the right thing to do.
That beautiful smile!! Frankie, you're so brave. I am praying fervently for you and your doctors, and for your Mom and Dad. May God bless you and watch over you, and heal you from your seizures. Love from Teresa and the whole Baldinucci-Greenberg clan
He looks so brave God bless him and you guys.......I am praying and thinking of you.........Emily sends Frankie lots of hugs and kisses.........looking foward to an update
Good Luck Little Man We Are All Pulling For You....Paul V
ReplyDeleteYou look so brave Frankie! Sending all my love and looking forward to giving you the biggest hug ever! You are truly a blessing to all who know you!
ReplyDeleteThat beautiful smile!! Frankie, you're so brave. I am praying fervently for you and your doctors, and for your Mom and Dad. May God bless you and watch over you, and heal you from your seizures.
ReplyDeleteLove from Teresa and the whole Baldinucci-Greenberg clan
He looks so brave God bless him and you guys.......I am praying and thinking of you.........Emily sends Frankie lots of hugs and kisses.........looking foward to an update
ReplyDeleteChristine
What a sweet smile. Thinking of you.
ReplyDeleteDonna